Ask Sharon Weston, MS RD CSP LDN – June 2022

This month’s “Ask the Expert” features Sharon Weston, MS RD CSP LDN, Clinical Dietician, The Celiac Disease Program, Boston Children’s Hospital. Sharon answers questions about the differences in bread in Europe and in America.

Question – I heard that bread in Europe is gluten-free because of how they process wheat. Is this true?

Sharon Weston– Flour and grains in general can have very many different species. When we look at wheat that is produced in Europe compared to America, there are some differences in terms of hardness. That difference in hardness also means a difference in the content of protein. Keep in mind gluten is a protein.

When you look at wheat that is produced in Italy, in general, the hardness of it is much less compared to wheat that is produced in America. Because there is less hardness, there is less gluten. But, there is still gluten in it.

Bread that is produced in Europe still contains gluten. It may contain a little less gluten than in bread produced in America. But, the bread still contains gluten and it is not okay for a patient with celiac disease to eat on a gluten-free diet.

Ask Dr. Chang – March 2022

This month’s “Ask the Expert” features Dr. Denis Chang, MD, MS. Dr. Chang  talks  about having genes for celiac disease and if mouth sores are a symptom of celiac disease.

Question – If I carry both genes for celiac disease, should I eat gluten-free to prevent celiac disease from developing?


Dr. Chang – While we know that certain genes increase the risk of developing celiac disease, having a genetic risk alone does not determine whether someone will eventually develop celiac disease. Up to 40% of the people in the word have a genetic risk for celiac disease, but only a small faction for them go on to develop the disease. In other words, there are a lot more people out there who have a genetic risk than those who actually have celiac disease. Because of this, we do not recommend going on a gluten-free diet based on genetics alone. Also, if you are getting tested for celiac disease, it is important that you are still eating gluten.


Question – Are mouth sores related to celiac?


Dr. Chang – The short answer is yes. There are more than 200 different symptoms that have been associated with celiac disease and mouth sores are certainly one of them. However, that does not mean that if you have recurrent mouth sores that they are only due to celiac disease. There may be other reasons why someone might be getting mouth sores. It is important to work with your doctor to figure out why you have mouth sores.

If mouth sores are due to celiac disease, the gluten-free diet should definitely help them heal.

Ask Tara McCarthy, MS, RD, LDN – February 2022

This month’s “Ask the Expert” features Tara McCarthy, MS, RD, LDN, Clinical Nutrition Specialist, The Celiac Disease Program, Boston Children’s Hospital. Tara answers questions about convection ovens and precautionary labels on food.

Question – Are convection ovens safe for people with celiac disease? I fear that in addition to circulating air, that gluten from items previously cooked in the oven will also circulate and contaminate my gluten-free food. 


Tara McCarthy – A convection oven is a type of oven or a setting on your conventional oven that has a fan and an exhaust system. The premise behind the convection oven/setting is to circulate the air to cook the food item more quickly and evenly. Understandably, people may be concerned about possible cross-contact when cooking gluten- free items in an oven that has a fan blowing air around inside. There are no studies on cross- contact with convection ovens, so it has been assumed this would be a concern. We ran some kitchen tests which involved baking flour in a convection oven.  First, we placed an empty tray beneath the tray covered with flour, and did not find any flour particles on the empty tray after baking was complete. Secondly, we ran a test to see if any flour could come from the fan after baking foods containing gluten. We baked a tray covered with flour, removed the tray, and replaced it with a clean empty tray, and then ran the convection oven again. After removing the pan, we found there was no residual gluten flour on the clean pan. We would say that using a convection oven is safe and low risk place of cross-contact. 

Question – Should I avoid products that are labeled “processed in a facility that also processes wheat”? 


Tara McCarthy – This question comes up very often and for good reason, it says the word wheat right on the label. There are several VOLUNTARY labeling statements that manufacturers include as they feel this might be useful to customers or may be due to marketing or just manufacturer preference. Precautionary statements include: may contain wheat, made in a facility that processes wheat and made on shared equipment with wheat and may contain wheat. These PAL (precautionary Allergy Labeling) statements can be confusing. Please note that these precautionary statements are NOT regulated. Our advice comes in two parts.

  1. If a product has a precautionary label and says GF, this is safe with little to no risk.
  2. If a product has a precautionary label and DOES NOT say GF, then your degree of concern should be proportional to the potential risk. If you eat it weekly or more often, then we advise you to call the company to find out more about how the product is produced so that you can decide whether or not you feel eating it. 

 

Gluten in Face Masks Statement

With the number of COVID-19 cases rising across the United States, including in children, wearing a mask is more important than ever. As some schools have asked that children start wearing higher level filtration masks (KN95 and KF94 masks), our Boston Children’s Hospital Celiac Disease Program and Celiac Kids Connection team has received several questions about the potential for these masks to be made using gluten. After extensive research in the scientific and mask production communities, as of January 2022, our team is unaware of any face masks being made using gluten.

We are aware of a study that has been circulated in online support groups discussing the potential use of the gluten polymer to make face masks in the future. The research is examining gluten as a material that could be used for mask production that would result in more biodegradable and environmentally sustainable masks. As of January 2022, we are unaware of any masks being produced using this gluten polymer process.

 Currently, most masks are made using plastic fibers that can take hundreds of years to disintegrate. As manufacturers look for more environmentally friendly ways to make masks, they are testing out many different types of materials including rice, coffee, corn starch, sugar cane, and cassava, to name a few. As these processes develop, our Celiac Program will continue to provide updates on any materials that could potentially cause a gluten exposure for individuals with celiac disease.

A few reminders for proper mask usage:

  • Use a mask that completely covers your nose and mouth
  • Masks should fit snugly against the sides of your face and not have gaps. This will also help prevent foggy glasses
  • Select masks that have a nose wire to prevent air from leaking out of the top of the mask
  • Always use a fresh, clean mask
  • Remind your child not to chew on or touch their mask throughout the day. If a mask becomes wet or moist it will not function as well

As always, if you have additional questions, you can reach our team at celiac@childrens.harvard.edu.

Boston Children’s Hospital
Celiac Disease Program

COVID-19 Vaccine is Now Available for Kids Ages 5 & Up

The COVID-19 vaccine is now available for kids ages 5 and up at Boston Children’s Hospital. This vaccine is safe and recommended for kids with celiac disease. There is no gluten in the COVID vaccine

Watch this TikTok video where our Boston Children’s Hospital Celiac Disease Program team talk about the vaccine, what to expect, and how to schedule an appointment for your child’s shot.

Candy List Updated for 2021

Celiac Kids Connection’s annual candy list has been updated for 2021.

As we look towards Halloween and the holiday season, we hope you will find this helpful. If you have any questions, all of the candies on our list include contact information for the manufacturer.

Remember, ingredients are subject to change and you should rely on the ingredient list on the product you are purchasing.

Ask Dr. Weir – September 2021

This month’s “Ask the Expert” features Dr. Dascha Weir, MD, Associate Director, The Celiac Disease Program, Boston Children’s Hospital. Dr. Weir answers questions about gluten in personal care products and how to help your child after an accidental gluten exposure.

Question – I feel like we have finally gotten a handle on which foods are gluten-free (GF) and which are not GF. Then I read an article that suggested that in addition to food, I need to make sure my child is not exposed to gluten in soap, lotions, make-up and other personal care products? Do I also need to verify the GF status of my child’s personal care products?


Dr. Weir – It is important to remember that gluten needs to be ingested to cause immune activation and the small intestine inflammation and damage associated with celiac disease. People with celiac disease do not need to worry about gluten being absorbed through their skin.  However, many families worry that gluten in personal care products will make its way into their child’s GI tract.  While there could be potential exposure in some scenarios (for example, a child putting their fingers in their mouth or drinking bathwater), it is unlikely that significant amounts of gluten would be ingested in these situations because typically personal care products do not contain large loads of gluten. If a personal care product that your family uses has a gluten containing ingredient, you may choose to use an alternative product if one is available. However, you do not need to stick to certified gluten-free products only.  As always, we recommend hand-washing with soap and water before eating as another way to reduce small gluten exposures and spread of infection!  If your child is not doing well or you have specific concerns about their sensitivity to products, please reach out to your celiac team to discuss.

 
Question – My child went to a birthday party and ate one of the gluten containing snacks by mistake. She only ate a small amount when she realized her mistake. But she was still ill later that evening. For future mistakes, is there an over the counter medication that I can give her to lessen the impact of her exposure to gluten?


Dr. Weir – This is a common scenario that most families with a child with celiac disease have experienced at some point in time.  Even with all the planning, effort and vigilance that families put into avoiding gluten, mistakes can still happen. Kids with celiac disease have a wide range of symptoms when they ingest gluten. Typically, the symptoms are short-lived and get better with time and supportive measures such as rest, good hydration or curling up with a warm hot-water bottle.  Tylenol (acetaminophen) may be indicated to treat a headache or abdominal pain. If a child experiences significant vomiting with gluten exposure, some gastroenterologist will recommend a fast-acting anti-nausea prescription such as Zofran (ondansetron).  While there are over the counter medications available that claim to break down gluten, we do not recommend them for people with celiac disease either to prevent an exposure or to treat one. Increased and better options for treating children for gluten exposure may be available in the future as scientific discovery and medical practice is always advancing.

Does Pregnancy Induce Celiac Symptoms? Researchers Are Trying to Find Out

A study team at Beth Israel Deaconess Medical Center led by Dr. Amelie Therrien is conducting a study that aims to observe, understand and determine the frequency of celiac-related symptoms and the impact on the quality of life in patients living with celiac disease during their pregnancy and the postpartum period.

You are invited to participate in this study if you are a woman with an established celiac disease diagnosis who has been following a gluten-free diet for at least 12 months. We are enrolling some women with celiac disease who are pregnant and some women who are not currently pregnant. Women who are currently pregnant and don’t have a celiac disease diagnosis may also be eligible for the study.

If you choose to participate in the study, you will be asked to complete a survey and provide stool samples at specific time points. For more information, please contact cdpreg@bidmc.harvard.edu

Food Label Modernization Act of 2021

TAKE ACTION – Join us, the Celiac Disease Foundation and the entire GF community in supporting the Food Labeling Modernization Act of 2021.

This bill would require that all gluten-containing grains (wheat, rye, AND barley) be clearly labeled on food packaging, making it easier and safer for individuals with celiac disease to purchase food items. Current food labels do not provide the simple, straightforward information that celiac patients need to evaluate products and make healthy choices.

Please take ONE MINUTE to contact your Members of Congress, using the Celiac Disease Foundation’s simple, pre-populated form, encouraging their support of this important bill.

Click here to learn more about this bill.